Living with Epilepsy in the society – Epilepsy learner Video 7

This article is based on a video from Nayi Disha’s ‘‘Parent education series’  on Epilepsy and seizure management. In this video Dr.Nikit Milind Shah talks about the practical implications of living with epilepsy.

Practical implications of living with epilepsy

Many people still misunderstand epilepsy, leading to fear or exclusion. Restrictions in activities can affect independence, often resulting in anxiety and low confidence. Schools and workplaces may also lack awareness.

It is therefore important to promote awareness to reduce stigma and clear any misconceptions. Teach peers and teachers basic seizure first aid and encourage your child to carry a medical ID or alert card, for their safety.

Insurance

• Insurance companies often charge 10–15% higher premiums for people with epilepsy. 
• Health, accident, and travel insurance are usually available only if the illness or accident is not directly caused by epilepsy.

Legal status

• Under Indian law, epilepsy is not officially categorized as a disability. Employment rights:

• Denying someone a job solely because of their history of epilepsy is a violation of law.
• However, individuals deemed medically unfit due to epilepsy may be excluded from specific jobs requiring strict medical fitness (e.g., defense services, aviation).

Driving and mobility

• India does not issue special driving licenses for people with epilepsy.
• To ensure safety, public transport is encouraged as the primary mode of mobility.

Supporting children with epilepsy

• Children with epilepsy may have average to good IQ, but cognitive or learning concerns can arise depending on the type of epilepsy. 
• Caregivers — parents and teachers — should be trained and equipped to meet daily needs and respond to emergencies.
• Teachers must be given appropriate medical information to handle seizures outside the home, especially when parents are not present.

Safety and emergency preparedness

• An emergency seizure card should always be with the child.
• This card helps others seek medical help quickly if parents or caregivers are not nearby.
• Parents and teachers should collaborate to ensure both academic growth and overall development.

Sports and outdoor Activities

• Restricting outdoor activities is counter‑productive and may harm self‑esteem. There are certain sports that are contraindicated, especially in early stages like swimming, cycling. However, swimming can be introduced later under expert supervision.
• Group sports should be encouraged since they build confidence and reduce isolation.
• Once epilepsy is well controlled, children can participate in sports with precautions advised by physicians.

DO’s and DON’Ts

• DO: Carry a seizure card, engage in safe outdoor activities, encourage participation in school sports, collaborate with teachers.
• DON’T: Over‑restrict activities, ignore emotional wellbeing, or hesitate to consult doctors about management strategies.

Children with epilepsy can lead a normal life with proper management, love, and support. By following medical guidance and creating a safe, nourishing environment, families and schools can empower children to thrive.

For a family, the journey that begins with a seizure diagnosis extends far beyond the treatment plan. Ongoing guidance and support from the society are essential to ensure their child grows into a confident, happy, and well‑integrated member of the community.

Watch this video to understand
– What are the legal considerations to bear in mind when approaching insurance companies or employment agencies/corporations?
– If your child with epilepsy, after turning into a young adult, would qualify to avail a legal driver’s license?
–How can educators support a child with epilepsy during school hours when parents or immediate caregivers are not present
– If a child who suffers from bouts of seizure, with the right kind of precautions, can very much enjoy several sporting and outdoor physical pursuits?

DISCLAIMER: Please note that this guide is for information purposes only. Please consult a qualified health practitioner for safe management.

Watch this video to get a brief introduction about Epilepsy, its causes and myths surrounding this condition.

If you have questions about Autism, Down Syndrome, ADHD, or other intellectual disabilities, or have concerns about developmental delays in a child, the Nayi Disha team is here to help. For any questions or queries, please contact our FREE Helpline at 844-844-8996. You can call or what’s app us. Our counselors speak different languages including English, Hindi, Malayalam, Gujarati, Marathi, Telugu, and Bengali.