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Strategies to manage Fragile X Syndrome

Fragile X Society

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Key Takeaways:

Strategies for Fragile X Syndrome:

  • Maintain routine- A visual schedule provides structure, reducing anxiety and improving cooperation and learning.
  • Avoid forcing eye contact- Avoid forcing eye contact, as it triggers anxiety; the child can still learn without it.
  • Keep it contextual- Incorporate the child’s interests into learning, as they are need-based learners and engage more with contextual material.
  • Indirect teaching- Use third-person language, like talking on the phone, to communicate with children with Fragile X syndrome, as they will listen and absorb information.
  • Let them complete- Instead of asking, “What did you do in the garden today?” say, “You went to the garden and…” to help reduce anxiety and encourage completion.
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Fragile X syndrome is a genetic disorder. It is caused by changes in a gene that scientists called the FMR1 gene (Centers for disease control and prevention). The above infographic on strategies to manage Fragile X Syndrome is curated from the Fragile X Society. 

It is important to praise and celebrate every victory of your child. Always remember that they are putting in a lot of effort in everything they are doing.

The infographic above talks about the following strategies to manage Fragile X Syndrome:

  • Maintaining a routine for children with Fragile X Syndrome
  • Avoiding force eye contact
  • Keeping the learning contextual
  • Indirect teaching
  • Letting them complete the conversation

If you wish to understand more about FXS, you can also check out the article on what is Fragile X syndrome? 

If you have questions about Autism, Down Syndrome, ADHD, or other intellectual disabilities, or have concerns about developmental delays in a child, the Nayi Disha team is here to help. For any questions or queries, please contact our FREE Helpline at 844-844-8996. You can call or what’s app us. Our counselors speak different languages including English, Hindi, Malayalam, Gujarati, Marathi, Telugu, and also Bengali.

DISCLAIMER: Please note that this guide is for information purposes only. 

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