Empower and inform parents about Down Syndrome – Talk by Dr. Surekha Ramachandran

Insights from Dr. Surekha Ramachandran, Founder – Down Syndrome Federation of India

“There is no better therapist than a parent,” says Dr. Surekha Ramachandran. As someone who has supported thousands of families across India through the Down Syndrome Federation of India (DSFI), she believes strongly in the power of families to help their child grow.

When a child has Down syndrome, families are often overwhelmed with advice, therapies, and fears about the future. But Dr. Ramachandran reminds us that much of what a child needs to thrive can begin at home, with small, consistent steps and loving encouragement.

Early intervention is not something to be scared of

Early intervention means starting supportive activities like speech therapy, physiotherapy, and play-based learning, as early as possible. This helps strengthen a child’s ability to move, communicate, learn, and relate to others.

Some families may feel afraid of this word, thinking it means something is “wrong.” But early support is not a sign of failure, it’s a way of giving your child what they need to grow in their own way. When doctors and therapists explain this clearly, families feel more prepared and hopeful. Dr. Ramachandran says, “If the doctor is empowered, the parents will be too.”

Parents can be their child’s biggest support

Dr. Ramachandran emphasizes the importance of training parents, especially mothers in everyday techniques that help children. For example, when a child walks on a straight line or tries something new, positive feedback like clapping, smiling, or saying “well done” can help them feel secure and capable. This builds self-belief and encourages them to keep learning.

She believes that confident parents raise confident children. If families believe in their child’s abilities, the child often feels more willing to try, explore, and grow.

Be mindful of how you respond

Children pick up on the moods and reactions of people around them. They notice how adults respond when they make mistakes, try new things, or express themselves. Dr. Ramachandran encourages parents to be mindful and calm in their responses, especially when a child is struggling. How you react can shape your child’s behavior and emotional development over time.

Look after their health: Thyroid, vision, and hearing

Health checks are a crucial part of supporting your child’s development. Dr. Ramachandran suggests checking thyroid levels every six months. Many children with Down syndrome experience thyroid differences (hypothyroidism or hyperthyroidism), which can affect their energy levels, attention span, and ability to participate in school.

She also recommends regular hearing and vision check-ups. Sometimes, children may not be able to say that they can’t hear or see clearly but changes in behavior, frustration, or avoidance of activities can be clues. Regular checks help ensure they’re able to learn and interact comfortably.

Nutrition matters

Good food supports a strong foundation. If a child isn’t eating well or has limited access to nourishing meals, it can affect their ability to participate in therapy or daily activities. Dr. Ramachandran emphasizes the importance of a balanced diet to support energy, immunity, and growth.

Encouraging families and busting myths

In her talk, Dr. Ramachandran also addressed common questions that parents have about Down syndrome. She shared how many myths still exist and encouraged families not to feel discouraged. Every child has potential. With the right support and belief from those around them, children with Down syndrome can lead fulfilling lives.

She reminded families never to underestimate their children, and to look at their strengths, not just their challenges.

About DSFI

The Down Syndrome Federation of India (DSFI) was started in 1984 with just six children. Today, it supports families not only across India but also in the Middle East. Under Dr. Ramachandran’s leadership, DSFI offers counseling, therapy, training programs, and resources to parents, siblings, and children with Down syndrome. It also works to build awareness and acceptance in society.

Need support?

If you have questions about Down syndrome, Autism, ADHD, or other intellectual and developmental disabilities, the Nayi Disha team is here to help. You can reach out for free guidance and support through our helpline:

Call or WhatsApp: 844-844-8996
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