What is Epilepsy? – Epilepsy learner Video

Do you have a child who has experienced a seizure? Or perhaps you know of a child who has? Seizures can be worrying to witness, and when they occur repeatedly, the condition is known as Epilepsy. Epilepsy is one of the most common neurological conditions today, and while it can feel overwhelming at first, knowledge and awareness can make a big difference.

Our goal is to provide families with information that helps them feel supported and equipped. With the right care, children with Epilepsy can live fulfilling lives, grow in independence, and become self-assured young adults.

What are seizures?

A seizure is a temporary change in behavior, awareness, movement, or sensation caused by unusual bursts of electrical activity in the brain. In simple terms, it is the brain’s electrical system misfiring for a short period of time.

Seizures can look very different from child to child. Some may involve jerking movements or loss of consciousness, while others may be more subtle, such as brief staring spells, sudden confusion, or unusual sensations.

What is Epilepsy?

Epilepsy is not a single disease but a neurological condition characterized by repeated seizures. A child is usually diagnosed with Epilepsy if they have had two or more unprovoked seizures (meaning seizures that are not caused by temporary factors like fever or low blood sugar).

It is important to remember that Epilepsy is manageable. Many children respond well to treatment, lead active lives, and participate in school, friendships, and play just like their peers.

Causes of Epilepsy

In some cases, the exact cause of Epilepsy is unknown. However, research has identified several possible factors that may contribute:

• Genetic influences – Sometimes Epilepsy runs in families due to certain inherited patterns.
• Structural changes in the brain – Conditions like stroke, infections, or injuries can affect brain functioning.
• Developmental differences – Some children with intellectual and developmental disabilities may have a higher chance of seizures.
• Other medical conditions – Problems like brain tumors, high fever, or metabolic issues can sometimes trigger seizures.

Understanding the cause can help doctors choose the best treatment plan for each child.

Myths and misconceptions about epilepsy

Families often encounter fear or stigma when Epilepsy is mentioned. These misconceptions can make life harder for both parents and children. Let’s clear some common myths:

• Myth 1: Epilepsy is rare.
  Fact: It is one of the most common neurological conditions worldwide.
• Myth 2: A seizure means the child is “possessed” or “cursed.”
  Fact: Seizures are purely medical events caused by brain activity, not supernatural forces.
• Myth 3: Children with Epilepsy cannot live normal lives.
  Fact: With proper support and treatment, most children with Epilepsy grow up to live independently, study, work, and build relationships.

Recognizing seizures correctly

One of the challenges parents face is identifying seizures accurately. Sometimes everyday behaviors or medical events can be mistaken for seizures, such as fainting, sleep disturbances, or even daydreaming.

That’s why a professional evaluation is important. Recording what you observe — duration, body movements, awareness, and recovery can help doctors make the right diagnosis.

Supporting a child with epilepsy

• Seek medical guidance. Work with a pediatrician or neurologist to develop a management plan.
• Create a safe environment. Make small adjustments at home and school to ensure safety during a seizure (for example, padding sharp edges or informing teachers).
• Build understanding in the community. Share information with family, friends, and teachers so they know how to respond calmly.
• Focus on strengths. Children are more than their diagnosis. Encouraging hobbies, friendships, and independence builds confidence and resilience.
• Stay positive. Many children outgrow seizures, and even those with long-term Epilepsy can thrive with the right care.

Raising awareness about Epilepsy is essential because it reduces stigma and ensures children receive the support they need. When families, schools, and communities understand Epilepsy, children feel included, safe, and accepted.

Resources and support

At Nayi Disha, we believe no family should feel alone on this journey. If you have questions about Epilepsy, Autism, Down Syndrome, ADHD, or other developmental differences, our team is here to help.

Free Helpline: 844-844-8996 (Call or WhatsApp)
Languages available: English, Hindi, Malayalam, Gujarati, Marathi, Telugu, and Bengali

You may refer to this link to refer to frequently asked questions about Epilepsy and its management. 

Disclaimer

This guide is for information purposes only. Please consult a qualified health practitioner for safe and effective management of seizures and Epilepsy.

If you have questions about Autism, Down Syndrome, ADHD, or other intellectual disabilities, or have concerns about developmental delays in a child, the Nayi Disha team is here to help. For any questions or queries, please contact our FREE Helpline at 844-844-8996. You can call or what’s app us. Our counselors speak different languages including English, Hindi, Malayalam, Gujarati, Marathi, Telugu, and Bengali.

DISCLAIMER: Please note that this guide is for information purposes only. Please consult a qualified health practitioner for proper management.