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Opening the doors

A child’s brain grows and evolves rapidly with each experience he or she has throughout the day, especially in early childhood. These experiences form stepping-stones to further development. Early identification of differences in development and early intervention is important for the child’s development.  Each family is unique and caregivers know their child the best and so while planning interventions, better outcomes are achieved if the family and therapists work together.

Opening the doors is a campaign that encourages professionals to invite parents and caregivers of children to be present in the therapy rooms during sessions. This may form the first step to building positive partnerships with families.

Caregivers often give doctors/therapists a peek into what happens at home and their inputs about the child’s likes, dislikes, behaviours etc, help in making therapy interventions more meaningful. Some parents learn, apply and intuitively tweak the intervention strategies according to their child’s needs.  Along with the child, therapists/doctors form new connections with families over time.  Opening the door may lead to new conversations and opportunities to address the parents’ anxieties and concerns about the future.

The best results come from therapists and parents working together. To know more, watch this video.

When parents and professionals understand each other’s priorities and perspectives and make decisions jointly, there will be a greater likelihood of positive outcomes for the family and the child. Working in partnership with therapists is a family’s right and can lead to better outcomes.

To know more about how the participation in a child’s therapy session is beneficial for parents, watch this video. 

If you have questions about Autism, Down Syndrome, ADHD, or other intellectual disabilities, or have concerns about developmental delays in a child, the Nayi Disha team is here to help. For any questions or queries, please contact our FREE Helpline at 844-844-8996. You can call or what’s app us. Our counselors speak different languages including English, Hindi, Malayalam, Gujarati, Marathi, Telugu, and Bengali.

DISCLAIMER: Please note that this guide is for information purposes only. Please consult a qualified health practitioner to understand safe management.

How To Be A Disability Ally?

How to be a disability ally

Something that we are asked frequently as an organisation working with families and individuals impacted by Autism, Down Syndrome and other developmental disabilities is how people can become better disability allies. While well-meaning, this term ‘ally’ holds a lot of confusion for people who want to speak up and advocate for this issue.

So, who is an ally? An ally is someone who supports a cause by learning more about it, speaking about it at the right forums and instances and most importantly, someone who shifts the spotlight on to those who are marginalised, under-represented or not heard or overlooked.

As per India’s latest statistics from the 2011 Census, 2.2% of the Indian population has a disability. In our country, there is not only so much of a need for allies but also many opportunities. If you are someone who cares deeply about disabilities (including any type of disability – physical or developmental or intellectual), this list is for you.

Here are some tips from the Nayi Disha team on how to be a better ally –

READ UP

First off, you need to know more about the disabilities you want to be an ally for. Read on what the medical and legal definitions are, what the current laws allow, what the policies around disabilities in the country are and what are the current issues the community is dealing with. Only when you make an effort to involve yourself deeply can you speak well in support.

SHARE THE STAGE

Whenever you have the opportunity to share the stage or shift the spotlight on someone with a disability, take every opportunity to do so. You should never claim to speak on the behalf of those who are disabled and encourage authentic voices and conversations from inside the community.

BE INCLUSIVE AND PUSH FOR IT

As an ally, you will be part of situations where you encounter infrastructure, conversations, public policies, cultural trends that may be exclusionary. As an ally, it is your responsibility to not only speak up and push for inclusivity – it can be a push for better representation, inclusive laws and better dialogue and debate around issues. As an ally, lead such conversations and initiatives whenever you can.

SHOW UP IN ANY WAY

While it is difficult to be always physically present for everything, find your own way to amplify voices of people with disabilities – show up in your own way. This can by promoting events, talks, discussions – it can be connecting right people in your network, it can be amplifying messages in your network or any other way you like.

Most importantly, know that you will make mistakes. There will be a learning curve. But like all great things, being an ally for people with disabilities can be one of the most rewarding things you do.

If you have questions about Autism, Down Syndrome, ADHD, or other intellectual disabilities, or have concerns about developmental delays in a child, the Nayi Disha team is here to help. For any questions or queries, please contact our FREE Helpline at 844-844-8996. You can call or what’s app us. Our counselors speak different languages including English, Hindi, Malayalam, Gujarati, Marathi, Telugu, and Bengali. 

DISCLAIMER: Please note that this article is for information purposes only.

 

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